![]() Swallowing and breathing problems make life difficult even when they come home. They spend many months in the hospital and undergo many surgeries and other treatments. CHARGE syndrome is correlated with genetic mutation to CHD7 and the prevalence of CHARGE syndrome is 1:10,000-1:15,000 live births.īabies with CHARGE syndrome are often born with life-threatening birth defects. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. CHARGE syndrome is a recognizable genetic syndrome with known pattern of features.
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